HYDERABAD: Deemed as one of the rarest surgeries, a complex liver transplant and open heart surgery was performed on a local 5-year-old girl by doctors at Apollo Hospitals here last month.
Dr Manish C Varma, head of the liver transplant department at Apollo Hospitals, after reviewing her condition a month after her surgery, said here on Thursday that baby Parvati Rohra was suffering from a rare genetic disorder called Alagille Syndrome which affects one in a lakh children.
The family members were distressed not only because of the child’s disorder but also because both the kidneys of her father Harish Rohra failed and he was undergoing dialysis. They were saving money for his kidney transplantation when an emergency regarding the daughter’s ailment came up.
It was three years ago that Harish and his wife Prerna were informed about their child’s disorder. But doctors at other hospitals were not ready to do the rare surgery. However, when everything fell in place, including the expertise of doctors, for the combined surgery on Parvati, her parents have decided to go ahead with the surgery with all the money saved for Harish’s kidney transplantation.
“We could not wait for Parvati’s surgery. I am on dialysis and could wait,” Harish said. He has appealed to people, through his online fundraising campaign, to contribute for his kidney transplant. He uploaded his appeal on Impactguru.com. “The best option suggested by the doctors is kidney transplantation but it is very difficult for me to afford as the cost is ` 8 lakh for the operation itself. My daughter also underwent a liver transplant surgery and I have exhausted my entire savings,” he said.