muscular atrophy

Kerala couple needs Rs 17.5 crore to treat infant son with rare genetic disorder

Two days ago, they had met Health Minister Veena George in Thiruvananthapuram, who, on learning the boy’s plight, posted about it on her official Facebook page.

published on : 28th January 2023

Three kids get life-saving Rs 16-crore injections for free at Bengaluru hospital

The cost for treatment for rare diseases is high as it takes 8-10 years to develop a drug, explained Prasanna Shirol, founder of Bengaluru-based Organization for Rare Diseases India.

published on : 18th June 2021